Web Resources
Your health care provider is your first source of information because he or she understands your individual medical needs. Still, the Internet can be a good source of information about acromegaly or carcinoid syndrome, and it provides a way for patients and families to "talk" with one another, and share feelings and resources.
On this page, you will find links to sites that provide:
Acromegaly Resources and Support Groups
The Pituitary Network Association (PNA)
The Pituitary Network Association (PNA) is an international non-profit organization for patients with pituitary tumors and disorders, their families, loved ones, and the physicians and health care providers who treat them.
http://www.pituitary.org or call 1-805-499-9973The Pituitary Tumor Center of Massachusetts General Hospital
Harvard Medical School
National Organization for Rare Disorders (NORD)
NORD includes acromegaly in its rare-disease database and will email or FAX you a full report for a nominal fee.
http://rarediseases.org/ or call 1-800-999-6673Other Resources
Carcinoid Syndrome Resources and Support Groups
American Cancer Society, Inc.
http://www.cancer.org or call 1-800-227-2345Cancer Care, Inc.
http://www.cancercare.org or call 1-800-813-HOPE for information about support programsCarcinoid Cancer Foundation, Inc.
http://www.carcinoid.org or call 1-212-722-3132National Cancer Institute
http://www.nci.nih.gov, with valuable information at a section of the site called "CancerNet" or call Information Services: 1-800-4-CANCER
