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Carcinoid Syndrome Support Groups

Your health care provider is your first source of information because he or she understands your individual medical needs. Still, the Internet can be a good source of information about carcinoid syndrome, and it provides a way for patients and families to "talk" with one another, and share feelings and resources. On this page, you will find links to websites* that provide carcinoid syndrome resources and support groups.

NET Advocacy Groups*

Carcinoid Cancer Foundation (CCF)

1-888-722-3132 (toll free)


Neuroendocrine Tumor Research Foundation (NETRF)

(617) 964-1780


Los Angeles Carcinoid Neuroendocrine Tumor Society (LACNETS)


Healing NET Foundation



Neuroendocrine Cancer Awareness Network (NCAN)

1-866-850-9555 (toll free)


NorCal CarciNET Community


*These websites are maintained by third parties. Novartis Pharmaceuticals Corporation does not guarantee the accuracy, completeness, or any other aspect of the information on these sites.

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