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Carcinoid Syndrome Support Groups

Your health care provider is your first source of information because he or she understands your individual medical needs. Still, the Internet can be a good source of information about carcinoid syndrome, and it provides a way for patients and families to "talk" with one another, and share feelings and resources. On this page, you will find links to websites* that provide carcinoid syndrome resources and support groups.

*These organizations and websites are independently operated and are not managed by Novartis Pharmaceuticals Corporation. Novartis assumes no responsibility for any information they may provide.

Support Groups

Carcinoid Cancer Foundation (CCF)

1-888-722-3132 (toll-free)


Caring for Carcinoid Foundation (CFCF)



National Organization for Rare Disorders (NORD)


Neuroendocrine Cancer Awareness Network (NCAN)

1-866-850-9555 (toll-free)


NorCal CarciNET Community