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Carcinoid Syndrome Support Groups

Your health care provider is your first source of information because he or she understands your individual medical needs. Still, the Internet can be a good source of information about carcinoid syndrome, and it provides a way for patients and families to "talk" with one another, and share feelings and resources. On this page, you will find links to websites* that provide carcinoid syndrome resources and support groups.

NET Advocacy Groups*

Carcinoid Cancer Foundation (CCF)

www.carcinoid.org

1-888-722-3132 (toll free)

 

Neuroendocrine Tumor Research Foundation (NETRF)

www.netrf.org/

(617) 964-1780

 

Los Angeles Carcinoid Neuroendocrine Tumor Society (LACNETS)

www.lacnets.org

 

Healing NET Foundation

www.thehealingnet.org

1-615-369-6463

 

Neuroendocrine Cancer Awareness Network (NCAN)

www.netcancerawareness.org

1-866-850-9555 (toll free)

 

NorCal CarciNET Community

www.norcalcarcinet.org

 

*These websites are maintained by third parties. Novartis Pharmaceuticals Corporation does not guarantee the accuracy, completeness, or any other aspect of the information on these sites.

Novartis Resources

CarcinoidLink

www.carcinoid.com

 

Sandostatin LAR Depot Facebook Page

www.facebook.com/SandostatinLARDepot

 

Real Support

www.us.sandostatin.com/carcinoid-syndrome/patient-support/sign-up-for-support/